Research

 
 

Social work research in the field of acquired brain injury

INSWABI seeks to advance practice through (i) undertaking research initiatives in the area of ABI and (ii) promoting the research undertaken by INSWABI members in ABI. Some of our achievements are listed below.

INSWABI research initiatives

INSWABI members worked together to produce the first book dedicated to social work practice in the field of ABI.  We also commissioned a systematic scoping review on all social work authored peer reviewed publications published between 1970 and 2014. Finally, we have developed a family outcome measure (Family Outcome Measure-40).

Contemporary Perspectives on Social Work in Acquired Brain Injury

Contemporary Perspectives on Social Work in Acquired Brain Injury is the first book to have ever been produced that exclusively focuses on social work practice in the field of ABI.

The book started as a special double issue of the Journal of Social Work in Disability and Rehabilitation titled Contemporary Perspectives on Social Work in Acquired Brain Injury 2016 Vol 15, issues 3-4. This double issue was co-guest edited by Professor Grahame Simpson and Professor Francis Yuen (Editor-in-Chief of J of the journal). It involved contributions from many INSWABI members. In fact, nine of the ten articles have at least one author who was an INSWABI member.

 

The journal’s publisher was so pleased with the double issue that they decided it could be turned into a book. So the 11 journal articles became the following 11 chapters listed below (INSWABI members underlined). Any royalties from the book will go to supporting the INSWABI website.

 

Chapters:

1. Contemporary Perspectives on Social Work in Acquired Brain Injury: An Introduction.                      Grahame Simpson & Francis Yuen

 

2. Family Forward: Promoting Family Adaptation Following Pediatric Acquired Brain Injury.                      Lyndal Hickey, Vicki Anderson & Brigid Jordan

 

3.

Self-Advocacy for Independent Life: A Program for Personal Self Advocacy after Brain Injury.     Lenore A. Hawley

 

4.

Describing an Early Social Work Intervention Program for Families after Severe Traumatic Brain Injury.   Grahame Simpson, Daniella Pfeiffer, Shay Keogh & Brigitte Lane

 

5.

Acquired Brain Injury, Parenting, Social Work, and Rehabilitation: Supporting Parents to Support Their Children.   Mark Holloway & Lauren Tyrrell

 

6.

Mindful Connections: The Role of a Peer Support Group on the Psychosocial Adjustment for Adults Recovering From Brain Injury.   Melissa Cutler, Michelle L. A. Nelson, Maya Nikoloski & Kerry Kuluski

 

7.

Holding Resilience in Trust: Working Systemically With Families Following an Acquired Brain Injury. Franca Butera-Prinzi, Nella Charles & Karen Story

 

8.

Brain Injury as the Result of Violence: A Systematic Scoping Review    

Annerley Bates, Sarah Matthews, Grahame Simpson & Lyndel Bates

 

9.

A Clarion Call for Social Work Attention: Brothers and Sisters of Persons With Acquired Brain Injury in the United States .    Charles Edmund Degeneffe

 

10. Support Persons’ Perceptions of Giving Vocational Rehabilitation Support to Clients With Acquired Brain Injury in Sweden.    Marie Matérne, Lars-Olov Lundqvist & Thomas Strandberg

 

11.

Social Workers’ Perceived Role Clarity as Members of an Interdisciplinary Team in Brain Injury Settings.   Martha Vungkhanching & Kareen N. Tonsing

 

Simpson GK, Yuen F. (Eds.). (2018). Contemporary perspectives on social work in acquired brain injury. London, UK: Routledge. ISBN: 978-1-138-55974-5.

https://www.routledge.com/Contemporary-Perspectives-on-Social-Work-in-Acquired-Brain-Injury/Simpson-Yuen/p/book/9781138559745

Systematic scoping review

 

INSWABI commissioned a systematic scooping review to identify all social work-authored peer review journal articles, chapters and books addressing social work practice in ABI among adults of working age, as well as evaluate their quality and impact.

 

The review was conducted by INSWABI members Andy Mantell, Grahame Simpson, Martha Vungkhanching, Thomas Strandberg and Patti Simonson along with Kate Jones.

 

In the 40- year period from 1975 to 2014, 115 items were published that met the search criteria (intervention studies, n = 10; observational studies, n = 52; literature reviews, n = 6; expert opinion or policy analysis, n =   39; and others, n =   8). The publications could be grouped into five major fields of practice: families, social inclusion, military, inequalities and psychological adjustment. There was a significant increase in the number of publications over each decade which is a positive indicator for future social work research in this field.

 

Mantell A, Simpson GK, Vungkhanching M, Jones K, Strandberg T, Simonson P.. Social Work generated evidence in Traumatic Brain Injury from 1970 to 2014: A systematic scoping review. Health and Social Care in the Community, 26:433-448.

https://onlinelibrary.wiley.com/doi/epdf/10.1111/hsc.12476

Family Outcome Measure-40

The FOM-40 has been designed to document the current state of family members and the family system along the domains represented by the subscales in acute hospital, rehabilitation and long-term community settings. It can also be used to evaluate the efficacy of family support interventions and services by enabling the documentation of FOM-40 scores pre- and post-intervention or service admission/discharge.

The 40 items are organised into seven subscales. The subscales are: Family member coping (8 items), Family cohesion (5 items), Support demands (burden) (7 items), Relative adjustment (5 items), Adequacy of service support (5 items), Family member resilience (5 items), and Sustainability of family support (5 items).

The FOM-40 was co-developed by Grahame Simpson and Julie Winstanley in collaboration with the following INSWABI members: Karen Sasaki (Canada), Karen Thompson (Australia), Donna Lambden-Rowe(Australia),  Denise Young (Australia), Marianne Bush (Australia),  Judy Dawson (Australia), Zena Pigden (New Zealand), Patti Simonson (United Kingdom), Irene Nagy (Australia), Steve Wiseman (United Kingdom), Sonia Payne (Australia), Brigitte Lane (Australia), Simon Eggington (United Kingdom), Glenda McAlister (Australia), Georgina Hanna (Australia).

For more information about the FOM-40, see the following article:

Migliorini C, Callaway L, Moore S, Simpson GK. Family and TBI: An investigation using the Family Outcome Measure- FOM 40. Brain Injury DOI: 10.1080/02699052.2018.1553307

Journal articles and books

INSWABI members are also active in researching and publishing in the field of ABI. Please find a list of articles published over the past 5 years in peer-review journals by INSWABI members that address the field of ABI.

Franca Butera-Prinzi[GS1] 

Butera-Prinzi F, Charles N, Story K. Holding resilience in trust: working systemically with families following an acquired brain injury. Journal of Social Work in Disability & Rehabilitation 2016 12;15(3-4):285-304.

Butera‐Prinzi F, Charles N, Story K. Narrative family therapy and group work for families living with acquired brain injury. Australian and New Zealand Journal of Family Therapy. 2014 Mar;35(1):81-99.

Butera-Prinzi F, Charles N, Heine K, Rutherford B, Lattin D. Family-to-Family Link Up Program: A community-based initiative supporting families caring for someone with an acquired brain injury. NeuroRehabilitation. 2010 Jan 1;27(1):31-47.

 

Mark Holloway

M Holloway, D Orr, J Clark-Wilson Experiences of challenges and support among family members of people with acquired brain injury: a qualitative study in the UK Brain Injury, 1-11 2019

GM Giles, J Clark-Wilson, DM Baxter, R Tasker, M Holloway, S Seymour. The interrelationship of functional skills in individuals living in the community, following moderate to severe traumatic brain injury Brain Injury, 1-8

Clark-Wilson, J., Giles, G. M., Seymour, S., Tasker, R., Baxter, D. M., & Holloway, M. (2016). Factors influencing community case management and care hours for clients with traumatic brain injury living in the UK. Brain Injury 2016; 30(7):872-882.

M Holloway, L Tyrrell. Acquired brain injury, parenting, social work, and rehabilitation: supporting parents to support their children. Journal of Social Work in Disability & Rehabilitation 2016 15 (3-4), 234-259.             

Clark-Wilson, J., & Holloway, M. Life care planning and long-term care for individuals with brain injury in the UK. NeuroRehabilitation, 2015:,36(3); 289-300. doi:10.3233/NRE-151217

Holloway M  Rachel Fyson Acquired Brain Injury, Social Work and the Challenges of Personalisation The British Journal of Social Work, Volume 46, Issue 5, 1 July 2016, Pages 1301–1317, https://doi.org/10.1093/bjsw/bcv039

Holloway M. How is ABI assessed and responded to in non-specialist settings? Is specialist education required for all social care professionals? Social Care and Neurodisability 2014; 5:201-213.

M Holloway Motivational interviewing and acquired brain injury Social Care and Neurodisability 3 (3), 122-130, 2012

 

Lin Haag

Haag, H.L., Caringal, M., Sokoloff, S., Yoshida, K., Kontos, P. & Colantonio, A. (2016) Being a woman with acquired brain injury: Challenges and implications for practice.  Archives of Physical Medicine & Rehabilitation, 97(2 Suppl 1), 564-570.

Goldin, Y., Haag, H.L. & Trott, C.T. (2016) Screening for history of brain injury among women exposed to intimate partner violence. Physical Medicine & Rehabilitation Journal, 8(11), 1031-1126.

 

Lenore (Lenny) Hawley

LA Hawley, JM Ketchum, C Morey, K Collins, S Charlifue. Cannabis Use in Individuals With Spinal Cord Injury or Moderate to Severe Traumatic Brain Injury in Colorado Archives of Physical Medicine and Rehabilitation 2018

L Hawley, T Hart, W Waldman, M Glenn, F Hammond, K Dams-O'Connor Living Well After Traumatic Brain Injury. Archives of Physical Medicine and Rehabilitation 2018;99:1441-2

L Payne, L Hawley, JM Ketchum, A Philippus, CB Eagye, C Morey, ...Psychological well-being in individuals living in the community with traumatic brain injury Brain Injury 2018 32 (8), 980-985

C Harrison-Felix, JK Newman, L Hawley, C Morey, JM Ketchum, ... Social Competence Treatment After Traumatic Brain Injury: A Multicenter, Randomized Controlled Trial of Interactive Group Treatment Versus Noninteractive Treatment. Archives of Physical Medicine & Rehabilitation 2018 99 (11), 2131-2142

L Hawley, D Gerber, C Morey. Improving personal self-advocacy skills for individuals with brain injury: a randomized pilot feasibility study Brain Injury 2017 31 (3), 290-296

Lenore Hawley, Donald Gerber, Christopher Pretz, Clare Morey, Gale Whiteneck. Initial validation of two personal self-advocacy measures for individuals with acquired brain injury. Rehabilitation Psychology, 2016; 61(1): 308-316.

LA Hawley Self-advocacy for independent life: a program for personal self advocacy after brain injury Journal of Social Work in Disability & Rehabilitation 2016 15 (3-4), 201-212

Hawley, L., Newman, J. (2014).  Goal setting in social competence treatment after brain injury.  In R. Siegert and W. Levack (Eds.)  Rehabilitation Goal Setting: Theory, Practice and Evidence (pp.253-263)  Boca Raton, FL, CRC Press.

 

Lyndal Hickey

Hickey L, Anderson V, Hearps S, Jordan B. Family appraisal of paediatric acquired brain injury: a social work clinical intervention trial. Developmental Neurorehabilitation. 2018 Feb 8:1-8.

Hickey L, Anderson V, Hearps S, Jordan B. Family Forward: a social work clinical trial promoting family adaptation following paediatric acquired brain injury. Brain Injury. 2018 Jun 7;32(7):867-78.

Hickey L, Anderson V, Jordan B. Family forward: promoting family adaptation following pediatric acquired brain injury. Journal of Social Work in Disability & Rehabilitation. 2016 Dec 12;15(3-4):179-200.

 

Andy Mantell

Mantell, A and Scragg, T (2019) Reflective Practice in Social Work. 5th ed. London: Sage.

Mantell A, Simpson GK, Vungkhanching M, Jones K, Strandberg T, Simonson P.. Social Work generated evidence in Traumatic Brain Injury from 1970 to 2014: A systematic scoping review. Health and Social Care in the Community, 26:433-448. DOI 10.1111/hsc.12476

A Mantell. The importance of the perspective of carers and service users. Reflective Practice in Social Work, 2013 5, 65-7

Mantell A, Scragg T, editors. Safeguarding Adults in Social Work. Sage; 2011.

Mantell A. Under a cloud: carers' experiences of Huntington's disease Social Care and Neurodisability, 2010 1: 33-42

Mantell A. Traumatic brain injury and potential safeguarding concerns. The Journal of Adult Protection 2010 12, 31-42

Mantell A, editor. Social Work Skills with Adults. London: Sage 2009.

 

Marie Materne

Matérne, M., Lundqvist, L.-O., & Strandberg, T. (2016). Support Persons’ Perceptions of Giving Vocational Rehabilitation Support to Clients With Acquired Brain Injury in Sweden. Journal of Social Work in Disability & Rehabilitation, 15(3/4), 351-369. doi:10.1080/1536710X.2016.1220880

Matérne, M., Lundqvist, L. O., & Strandberg, T. Opportunities and barriers for successful return to work after acquired brain injury: A patient perspective. Work, 2017; 56: 125-134.

Matérne, M., Lundqvist, L.-O., & Strandberg, T. (2018). Support Persons’ Perceptions of Giving Vocational Rehabilitation Support to Clients With Acquired Brain Injury in Sweden In G. K. Simpson & F. K. Yuen (Eds.), Contemporary Perspectives on Social Work in Acquired Brain Injury (pp. 222): Routledge.

Matérne, M., Strandberg, T., & Lundqvist, L.-O. (2018). Change in quality of life in relation to returning to work after acquired brain injury: a population-based register study. Brain Injury, 32(13-14), 1731–1739. doi:10.1080/02699052.2018.1517224

 

Grahame Simpson

Simpson GK, McRae P, Hallab L, Daher M, Strettles B. Trajectories and clinical features of competitive employment after severe traumatic brain injury in the NSW Brain Injury Rehabilitation Program: Comparing return to pre-injury employment versus new employment. Neuropsychological Rehabilitation https://doi.org/10.1080/09602011.2018.1531769

Jones KF, Pryor P, Unger C, Simpson GK. Spirituality and its relationship with positive adjustment following traumatic brain injury: A scoping review. Brain Injury, 32, 1612-1622.                                         DOI: 10.1080/02699052.2018.1511066

Kelly G, Brown S, Simpson GK. The Building Bridges project: Linking disconnected service networks to assist people with brain injury in the criminal justice system. Neuropsychological Rehabilitation DOI: 10.1080/09602011.2018.1479274

Migliorini C, Callaway L, Moore S, Simpson GK. Family and TBI: An investigation using the Family Outcome Measure- FOM 40. Brain Injury DOI: 10.1080/02699052.2018.1553307

Simpson GK, Mitch V, Doyle M, Young D, Forman M, Solomon V, Gillett L, Strettles B. Investigating the model of case management used in the NSW Brain Injury Rehabilitation Program community rehabilitation teams: A prospective multicentre study. Journal of Head Trauma Rehabilitation, 33 (6): E38–E48 Doi:10.1097/HTR.0000000000000370

Brenner L, Foster JE, Hoffberg A, Matarazzo B, Hostetter T, Signoracci G, Homaifar B, Simpson GK. Window to Hope: A Randomized Controlled Trial of a Psychological Intervention for the Treatment of Hopelessness among Veterans with Moderate to Severe TBI. Journal of Head Trauma Rehabilitation 33(2), E64-E73.  doi: 10.1097/HTR.0000000000000351. PMID: 29084101

Whiting DL, Deane FP, Simpson GK, Ciarrochi J, McLeod HJ. (2018) The feasibility of using Acceptance and Commitment Therapy to address psychological distress after severe traumatic brain injury: Two case studies. Clinical Psychology 22(2), 230-240. DOI: 10.1111/cp.12118

Whiting DL, Deane FP, Simpson GK, McLeod HJ, Ciarrochi J. Cognitive and psychological flexibility after a traumatic brain injury and the implications for treatment: A conceptual review. Neuropsychological Rehabilitation, 2017; 27: 263-299

Simpson, G., Simons-Coghill, M., Bates, A., & Gan, C. (2017). What is known about sexual health after pediatric acquired brain injury: A scoping review. NeuroRehabilitation, 41(2), 261-280.

Simpson GK, Pfeiffer D, Keogh S. Describing an early social work intervention program for families after severe traumatic brain injury. Journal of Social Work in Disability and Rehabilitation 2016; 15 (3/4) 213-233. doi.org/10.1080/1536710X.2016.1220888

Bates A, Matthews S, Simpson GK, Bates L. Brain injury as the result of violence and the impact on informal caregivers: A systematic scoping review Journal of Social Work in Disability and Rehabilitation 2016; 15 (3/4) 305-331.

Simpson GK, Yuen F. Perspectives on Brain Injury: An Introduction. Journal of Social Work in Disability and Rehabilitation, 2016; 15 (3/4) 169-178.

Simpson GK, McCann B, Lowy M. Treating male sexual dysfunction after TBI: Two case reports. NeuroRehabilitation  2016:38, 281-289.

Kelly G, Brown S, Simpson GK, Burns S, Kremer P, Gillett L. The Overt Behaviour Scale – Self Report (OBS-SR) for acquired brain injury: Exploratory analysis of reliability, validity and burden. Neuropsychological Rehabilitation doi.org/10.1080/09602011.2017.1322523

Simpson GK, Daher M, Hodgkinson A, Strettles B. Service utilisation, service access & unmet service needs of clients with traumatic brain injury: A comparison between urban, regional and remote populations in New South Wales. Journal of Head Trauma Rehabilitation 2016; 31:E26-E38.

McRae P, Hallab L, Simpson GK. Navigating employment pathways and support following acquired brain injury: Client perspectives. Australian Journal of Rehabilitation Counseling 2016; 22:76-92.

Gagnon J, Simpson GK, Kelly G, Godbout D, Ouellette M, Drolet J.D A French adaptation of the Overt Behavior Scale (OBS) measuring challenging behaviors following acquired brain injury: The Échelle des Comportements Observables (ÉCO) Brain Injury 2016;30:1019-1025.

INSWABI Progress Report

January 2016 – June 2016

 

Page 4

 

Anderson, M., Simpson, G.K., Daher, M. & Matheson, L. (2015). The relationship between coping and psychological adjustment in family caregivers of individuals with traumatic brain injury: A systematic review. In C.E. Kasper & Y.P. Conley (Eds.), Annual review of nursing research: Traumatic brain injury (Vol. 33, pp. 219-248). New York, NY: Springer Publishing Company.

Charters E, Gillett L, Simpson GK. Efficacy of electronic portable assistive devices for patients with acquired brain injury: A systematic review. Neuropsychological Rehabilitation 2015; 25:82-121. 

Hassett L, Simpson GK, Cotter R, Whiting DL, Hodgkinson A, Martin D. Process and education implementation interventions improve the quality, rating, framing and structure of staff goal setting in a community-based brain injury rehabilitation setting. Clinical Rehabilitation 2015; 29: 327-338. DOI 10.1177/0269215514544040.

Simpson GK, Sabaz M, Daher M, Gordon R, Strettles B. Service utilisation and service access among community-dwelling clients with challenging behaviours after severe traumatic brain injury: A multicentre study. Brain Impairment 2014:15:28-42.

Whiting DL, Deane FP, Ciarrochi J, McLeod H, Simpson GK. Validating measures of psychological flexibility in a population with acquired brain injury. Psychological Assessment 2015; 27: 415-423. doi: http://dx.doi.org/10.1037/pas0000050

Thomas Strandberg

Matérne M, Strandberg T, Lundqvist LO. Change in quality of life in relation to returning to work after acquired brain injury: a population-based register study. Brain injury. 2018 32 (13-14):1731-9.

Mantell A, Simpson GK, Vungkhanching M, Jones K, Strandberg T, Simonson P.. Social Work generated evidence in Traumatic Brain Injury from 1970 to 2014: A systematic scoping review. Health and Social Care in the Community, 26:433-448. DOI 10.1111/hsc.12476

Matérne, M., Lundqvist, L. & Strandberg, T. (2017). Opportunities and barriers for successful return to work after acquired brain injury: A patient perspective. Work: A journal of Prevention, Assessment and Rehabilitation, 56 (1), 125-134.

Strandberg T, Möller K, Widén S. Doctoral theses within the Swedish Institute for Disability Research, 2000-2012: A Review of Content and Interdisciplinarity. International Journal of Research in Health Sciences. 2017;5(2):1-10.

Matérne M, Lundqvist LO, Strandberg T. Support Persons’ Perceptions of Giving Vocational Rehabilitation Support to Clients With Acquired Brain Injury in Sweden. Journal of Social Work in Disability & Rehabilitation. 2016;15(3-4):351-69.

Matérne, M., Lundqvist, L. & Strandberg, T. (2016). Successful return to work after acquired brain injury: opportunities and barriers from a patient perspective. Brain Injury, 30 (5-6), 516-516.

Strandberg, T. (2015). Vertikal och horisontell kunskapsintegrering inom handikappforskningen. [Vertical and horizontal knowledge integration in disability research]. Socialmedicinsk Tidskrift, 92(2), 216-224.

Strandberg, T., Eklund, J. & Manthorpe, J. (2012). Promoting empathy in social care for older people. Working with Older People, 16(3), 101-110.

Strandberg, T. (ed.). (2011). Förhållningssätt och möten: Arbetsmetoder i social omsorg. [Attitudes and meetings: Working methods in social care]. Lund: Studentlitteratur. [Book]

Strandberg, T. (2018). Case management – relationsarbete inom rehabilitering av personer med förvärvad hjärnskada. [Case management - relationship in the rehabilitation of people with acquired brain injury]. I A. Bruhn & Å. Källström (red.). Relationer i socialt arbete: i gränslandet mellan profession och person, [Relationship in social work: in the borderland between profession and person], ss. 233-247. Stockholm: Liber.

 

 [GS1]Dahlberg CA, Cusick CP, Hawley LA, Newman JK, Morey CE, Harrison-Felix CL, Whiteneck GG. Treatment efficacy of social communication skills training after traumatic brain injury: A randomized treatment and deferred treatment controlled trial. Archives of Physical Medicine and Rehabilitation. 2007 Dec 1;88(12):1561-73.